After I received the genetic confirmation of my disease my doctors had no interest in looking for any other factors that might be contributing to my decline. But the research for both Kennedy’s disease and myotonic dystrophy finds weak correlation between severity of disease and the severity of the underlying genetic mutation (the number of expanded repeats) suggesting additional factors matter. In both diseases there is significant correlation between disease severity and insulin resistance. I had all 5 biomarkers of metabolic syndrome, strong indicators of severe insulin resistance and since going keto I’ve reversed all 5.
I’ve also found many other things, some very common, which were contributing to my poor health and apparently accelerating my disease. Here’s a book on Alzheimer’s which explores how so many things contribute to that disease and curiously are many of the same things which contributed to mine.
While the link I’ve posted allows one to freely download the book in violation of copyright I hope if you choose to do so and find the book helpful you are able to buy a paper copy of the book, if not for yourselves perhaps as a gift for your husband’s brother.