I need to rant... so i dont go off Keto and binge

[PortHardy]

Well… you can always go to the ER. Ive been there already and i was sent off for an ultrasound of my pelvis of all things… The pain is under my ribcage and the Dr i saw thought it was an ovarian cyst.

In total now… i have seen 7 Drs… 5 of them perscribed me anti-nausea drugs and did nothing more than give me a CT scan, an ultrasound and bloodwork. And concluded that because they couldnt see anything, it must be all in my head.
1 Dr believes me and sent me to the Specialist…the one i saw today, who said "its likely all in my head and said “i may never get to the bottom of your pain”. So… im not sure how many second opinions i can get.

As far as MRI goes, they wont do one in the Hospital. You need a referral and you are booked based on need. In some cases, like my friend…she has to wait 2 years. In my case, they are saying 2 months. We only have 2 MRI machines at each hospital…so we only have 4 MRI machines for the whole population of where i live plus 3 other cities. Lot of need but not enough resources.

I feel like i am losing my mind. I feel like im on the point of a nervous breakdown. The pain is real, the nausea is real. Its not in my head. The suffering is real and yet I feel like i am stuck jumping from Dr to Dr and getting fed more medications. I KNOW somthing is wrong but i just havent had the right test to prove it.

[KetoCancerMom]

I’m sorry. I was just trying to think of possible solutions. I’m so sorry you are having so much trouble with your doctor’s and getting imaging done.

[PortHardy]

its okay… please dont think my response was angry or anything towards your suggestions.
Our medical care is so messed up here. Everyone thinks we are blessed in canada with free health care BUT the result is an over-taxed system. Too much need…not enough finances…not enough Drs or Nurses …not enough hospital rooms or beds. Its all not enough for the need that we have. Unfortunately even our ER is burdened by people who think a simple cold is worth taking up vuable time for people who have actual problems…

[PortHardy]

I have heard of oxalates before but havent studied their effects yet…will certainly do some research now that you mentioned it

[KetoCancerMom]

Unfortunately even our ER is burdened by people who think a simple cold is worth taking up vuable time for people who have actual problems…

Yeah, that happens here in the US as well.

[FrankoBear]

I feel like i am losing my mind. I feel like im on the point of a nervous breakdown.

You are not losing your mind. You have questions about pain and they haven’t yet found the answers.

Be as persistent as you can.

For example, ultrasound is unreliable as an imaging technique to identify kidney stones. Even when I had a 6mm diameter kidney stone and lots of abdominal pain that would come and go unpredictably, the senior radiographer did not see it. I gritted my teeth, as the morphine was not working and giving me brain fog, to ask the emergency doctor, to please get the CT scan images looked at again. Because my pain was wave like, rather than constant, I explained to the doctor it was more likely to be ureteral spasm rather than diverticulitis, or peritonitis due to diverticular rupture, or severe IBD. Since the doctor was unsure, that was enough to help, for them go back over the results they had from the tests and imaging. The second time through the CT scan slices they saw the obvious problem (Oops, sorry). And they re-did another urine test, the second time finding the tell tale signs of fresh blood. But, a slight questioning and insistence saved me from gong for exploratory surgery.

Ask them to review your results.

Because you are nauseous, that can be due directly to pain. But if it is associated with food, or the idea of eating, it needs to be worked through from stomach, pancreas, liver, intestinal and kidney. Those would be the key blood markers to look at. Was everything in normal range? And then, if it was, were there any numbers either in high normal or low normal ranges?

The thing about kidney normal numbers is that one kidney can be injured or inflammed and the other kidney normal and the blood results will be normal despite the patient feeling nauseous and unwell.

A blood test at one end compared to a urine test taken at the same time at the other end is really helpful.

Came across this by chance about toxin release with fat loss:

It seems that the ketogenic diet is making me ill

I’ve had a frustrating pattern where for the past couple years I’d start feeling really good and weight loss becomes fairly easy and over a couple weeks I’d make great progress break my previous record low weight by a few pounds and then several recurrent health issues would kick in. Recently learned I have lead poisoning and my symptoms are consistent with chronic poisoning over many years. I think each time I’ve lost fat, fat sequestered lead has been released raising my blood level past so…

The doctor is partly correct about the experience of pain, possibly. My understanding is that pain without a known diagnosis can be perceived as more severe than pain that has been diagnosed and is re-contextualised mentally as healing process rather than ongoing injury.

[FrankoBear]

will certainly do some research now that you mentioned it

Have a look at the link. It came from @VirginiaEdie

[VirginiaEdie]

I also suffer chronic idiopathic hives and just came out of an eight month run of head to toe hives.

Have you heard of histamine intolerance? When we have allergies, our body releases histamine which causes the typical allergy symptoms. Then we take antihistamines to stop the symptoms.

There are foods that contain histamine: some fruits and vegetables, meats (especially aged), some types of nuts, wines, fermented food.
An enzyme called Dao (I have forgotten what that stands for) helps break down histamine in the food we eat. Some people, especially middle aged women, can develop a DAO deficiency. The result is all different kinds of reactions including hives, allergy symptoms, digestive problem without actually being allergic to something. The best solution is to avoid histamine containing food.

Histamine intolerance: Causes, symptoms, and test

https://www.ncbi.nlm.nih.gov/m/pubmed/17490952/

Also, there is a book called Dangerous Grains which is all about gluten intolerance and all the health problems it can caused. You may find that helps in understanding the damage that was done from gluten. (I’m not promoting Amazon, just showing the book and authors.)

Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous To Your Health

[VirginiaEdie]

I hope you and/or your doctors get things figured out. Virtual hug.

[Chantarella]

sounds kind of like gallstones. they often take a while to discover. can be confusing. but that should be discovered with the ultrasound.

[Ketodaisy]

Have you tried bone broth? I know you say you eat chicken broth, but bone broth is different. I would suggest getting away from sugar free jello as the sweeteners used could be exasperating your symptoms. Bone broth could help bridge the gap until you’re able to eat normally again. I’m sorry for the trouble you’re experiencing! I’ve had similar encounters with doctors. Enough that I’ve sworn them off lol

[PetaMarie]

Also, if you google nonpharmalogical pain management, you may find something that will help with your symptoms while you wait (since you can’t use opiates). Mental fatigue, pain and anxiety can be helped with them. I speak from experience. Best wishes.

[NikiD]

Dear “end rant”…how frustrating for you. My heart goes out to your plight especially due to your pain. No fun when we hurt and it is hard to stay motivated. Let me know if I can encourage you in some other way other than with my heartfelt empathy. - - Niki

[Kismet]

As far as MRI goes, they wont do one in the Hospital. You need a referral and you are booked based on need. In some cases, like my friend…she has to wait 2 years. In my case, they are saying 2 months. We only have 2 MRI machines at each hospital…so we only have 4 MRI machines for the whole population of where i live plus 3 other cities. Lot of need but not enough resources.

Canada, eh?
Sounds like my overgrown mining town of a city where a person would wait two years for a vasectomy, but get it over and done with at a smaller town’s hospital 1.5 hrs away. Go figure.

Yeah, our sick care system is fucked. I refuse to see any doctor, or step foot in any hospital as a patient. I even hate visiting people in hospital. The smells…

I’m afraid to say @PortHardy that you’re on your own. Do your own research and find out what your body needs, or doesn’t need, or is doing.

I’m leaning more and more towards plant-based toxins, ie: oxalates, histamines, salicylates, etc. I’m reading that getting rid of these toxins can come in waves, and they can be… not fun. If it’s too much to hangle, it is suggested adding back some oxalate foods to ease off on the oxalate dump for a while. IOW let your body rest for a bit before the next wave hits.

It’s not fun, but it’s worth it.

Look up Micheala Peterson. She had to go full carnivore to get rid of her sysmptoms. That might be a venue for you as well.

But keep in mind, any diet that removes oxalate-rich foods will have as a
side effect the dumping of such toxins.

It’s about mitigating negative effects while maintaining forward movement in one’s health.

[Paendora]

@PortHardy

Heather, here’s hugs (virtually at least). and prayers. Lots of great thoughts on this thread already, demonstrating that you are not alone and have support. It’s what I love most about this place.

[PortHardy]

thanks!

[PortHardy]

thank you

[PortHardy]

thanks Niki

[PortHardy]

Thanks PetaMarie

[PortHardy]

Yes… i made 2 Litres of bone broth…drank it and didnt find any difference in symptoms. To be honest, i didnt even really like the flavor of it either and it didnt provide enough sodium or potassium. This is why i use the bullion…its loaded with salt and potassium to get my electrolytes up