What is going on with fluid draining out of my body?


Hi I got notified of this thread and thought I would chime in.

The way to check your parathyroid is not a dexa scan. A dexa scan will help you determine if you have osteopenia or osteoporosis. If you do then that will indicate you “already hit the ground” with a calcium problem and they will now help. Like you, I wish to know before I hit the ground. You should not suffer bone loss before anyone checks your calcium and PTH.

A PTH blood test will tell you if your Parathyroid hormone is making excess parathyroid. If it is it is the body’s natural response to high calcium in the blood. The glands are a regulator. Bear in mind many labs report normal ranges to be what a healthy 20 year old can have. They can be as high as 88. But for someone like me at 56, I should never be above a 65. My results of 79, or 88 or even 94 were considered normal by two doctors and only slightly elevated by my general practitioner because of how normal is reported, when in fact it was too high and a warning bell. But as all hormones do, it fluctuates throughout the day. (So do calcium levels.) You need several tests to catch the norm. Right before my surgery I showed a 114. But the week before it was a 56. LOL Either an anomaly or a mistake by the lab as all my PTH was between 78 and 100 all year.

Calcium in the blood should never be above 9.9. No matter what anyone tells you. Most doctors follow an inaccurate diagnosing parameter that waits until your calcium is well over 10, like an 11 or 12, and wont react immediately unless it’s 12/13 or higher. They believe how high calcium is is the indicator. It’s not. It is how long you have lived with any numbers above 9.9. Again, all the endocrinologists I saw ruled out parathyroid because my calcium was between 10.0-10.4. And twice 9.8 or 9.9. But my average over 10 years years (one test per year) was 10.1. However, my symptoms were worse than people who had an elevated 12 or 13, and I actually had three tumors. I now only have one parathyroid gland left but I am 100% cured. Takeaway: calcium levels in the blood matter even at the lower end of their “cut off.”

Calcium in the urine is another test to see if your body is dumping high amounts of calcium. Mine was. They simply put me on hydrochlorathiazide to retain more and dump less. They ignored it as an indicator that something was wrong with my calcium production and how my body was using it.

I can’t say if your issues are related to parathyroid, but it is the only regulator your body uses to regulate calcium levels, and it is the only job those glands do. If you want to explore that possibility I suggest visiting Parathyroid.com. Dr Norman and his team are the world’s leading experts and surgeons in the world. Believe me when I say it is the clinic doctors and surgeons go to when they personally have the issue. They have a plethora of articles and medical studies and journals and clear science for you to learn from before ever having to see anyone. Ignore the “infomercial” feel of the site. It is a legit, highly respected clinic, but due to lack of acceptance by the medical community years ago (blocked by arrogance and egos,) they had to get the word out somehow and grab people’s attention. They are simply screaming from a mountain top to save lives, and many at that, mine included. 56,000+ to be exact. They provide more information and science up front then even the leading surgeons in Chicago did. Chicago barely shared anything.

If you have a calcium issue related to parathyroid, this site will let you know. They also have an app that was priceless to me. I entered all my blood test results from the last 10 years into it and the gauge needle flew to the extreme red for hyperparathyroid. I only had one year’s worth of PTH results from 4 tests last year but it was enough in light of all the other parameters. And I had 16 of the 22 symptoms for years.

Whatever blood tests you get or have gotten over the years, I would let their site and their app judge the significance before your doctor, who doesn’t seem to be thinking beyond the step by step instructional manual literally created on a whim. Dr Norman has a publication to a medical journal that shows that in flying colors.

There are other calcium conditions unrelated to parathyroid, but parathyroid must be completely ruled out first, and accurately, before chasing the other possibilities or you can hurt yourself further. I had mine inaccurately ruled out three times last year but had three tumors removed in December after doing my own research. Chasing all the other possibilities would never have cured me at all.

While I’m 100% fully cured of hyperparathyroidism, I’m left with severe advanced osteoporosis from it and presently trying to build back my bones without their extreme osteo meds. I won’t consider using those unless my dexa scan next January does not show my numbers improving.

(Edith) #22

You are welcome. I only have one more thought where calcium is concerned. I recently listened to a Peak Human podcast where the person being interviewed, Patrick Theut, had healed his CAD himself. One thing mentioned was vitamin K. Vitamin K helps our bodies pull calcium into our bones and the other tissues that need it. Without enough vitamin K, the calcium will get deposited in places it shouldn’t such as joints.

I don’t know if this could be related to your problem, but since you mentioned feeling better without calcium containing foods I figured I would pass it one.

Patrick’s website about K and linked research is below:

(Omar) #23

Thank you for putting the effort in this valuable reply.

I have no clue if I have parathyroid issue or not, but I am surprised that the doctor does not want even to hear what I am saying.

I have no bone loss if that a must in parathyroid issues.

Any way , I will note down the tests required that you mentioned and will go to independent lab before even talking to a specialist.

Thank you again

(Omar) #24

I run out of vitamin K long time, never attempted to buy another

Thank you for reminding me.

(Allie) #25

K2 is one of my daily supplements as I get visual migraines which I have linked to calcium intake. Haven’t had one since taking it.


Bone loss is not a must to have a parathyroid issue. It could take years before it begins to affect your bones. You would want to catch it before it gets to any bone loss.

Just rule out hyperparathyroid first, because if there is an issue it will cloud all other efforts.

Do research on parathyroid.com first too. Understand what you need to know about it before you or any doctors can rule it out.

I hope it can be ruled out. Most other calcium issues not related to parathyroid are not as critical or life threatening, unless of course they are ignored and neglected… but they are easier to manage and address when not. In that sense, ruling out parathyroid can give your mind a bit of rest from the worry and you can approach the concerns from other appropriate angles.

(Omar) #27

Thank you very much

(Edith) #28

I’ve been taking vitamin K regularly for the past three weeks. My joints are feeling better. At this point I don’t know if its coincidence or the vitamin K. Come to think of it, I also stopped supplementing Calcium at the same time. I can’t eat dairy, so I’ve always thought I needed to get calcium through other means as in supplements. Therefore I’ve been supplementing it for years. But since adding the K AND stopping the calcium supplements, my body feels much better. Only time will tell at this point. I have to admit, I don’t think it’s the placebo effect because I didn’t make these changes hoping for less joint pain.

(Omar) #29

I took calcium supplements like 35 years ago for few days. It gave me severe headache back then. I never tried it again.

My brother 2 years younger (61 years old) who we have close eating habits before keto, he continued to take calcium for many years, until he collapsed and rushed to the hospital with severe blockage/calcification of heart veins. While I cant say for sure, I suspect the calcium supplements he was taking to be the culprit.

(Edith) #30

A few weeks ago, my husband’s dentist told him he had stones in his salivary glands. I stopped his taking calcium supplements right away. We shall see if those stones go away.

(Allie) #31

Do you use collagen at all? It’s the high calcium levels in collagen that cause me issues, not straight away but after a couple of months use, guaranteed visual migraines.

(Omar) #32

It was long time ago. All what I remember is that I bought it from GNC

(Omar) #33

I think I found a very good clue in regards to my issue in this thread.

About 8 months back consumed large amounts of Vitamin D. I used to take 40 thousand units on a daily basis for two weeks and then, I dropped down to 5000 units on a daily basis for like 6 months.

This is on top of being exposed to very tense dose of sunlight on a daily basis, because where I live the sun rays is dense.

About 6 weeks ago, I had many lab works including vitamin D levels. The doctor told me be carful of vitamin D if you are taking this vitamin because it is very high in your blood. But I did not take him serious. Partly because at that time I stopped consuming vitamin D, but I was few hours in the sun on a daily basis.

Today I was reading an article that corelates the high vitamin D with high serum calcium. And that is when I connected the dots, because before that I did not know if what I am having is a high calcium, until I read another article I posted in this thread about the symptoms of hypercalcemia.

So I am more confident that my issue is high serum calcium, and it is caused by high level of Vitamin D. The high level of calcium is caused by two reasons. Extremely high dietary intake of calcium, and the second is the high vitamin D confirmed by the lab test.

I was under the impression that more vitamin D is good. I still remember when my son told me 8 months back don’t do that when I was taking high dose of vitamin D because it was his medicine which he was not using anymore. So I took it while waiting for more medicine from iHerb.

I hate my self for acting so careless and ignorance. The price almost cost my my kidneys.

So while I eliminated the high calcium contents food, I will also reduce my exposure to sun light, and I will monitor my vitamin D level, and calcium levels more frequent.

(Edith) #34

I wonder if we have to worry about the vitamin D made naturally when we are out in the sun? I bet we only have to worry about over supplementation. But if your D is too high, it is probably it makes sense to cut back on natural synthesis, as well, until your level fall into the normal range.

I’m glad you are figuring things out.

(Omar) #35

I found one lab test with my calcium is 10 and I checked the date, and remember I was not under high calcium containing food then.

(Omar) #36

This articles give methods to flush out vitamin D and calcium

I think on top of consuming foods with low contents of vitamin D and calcium, it advices consuming vitamin K2 as advised by @VirginiaEdie

since I have no access to vitamin K2, I will consume spinach (Which also contains calcium :grinning:)

(Robin) #37

Hip hooray, Omar! Your detective work paid off! And understandable how you ended up where you are. It’s too easy to hear we should be taking a certain supplement at a specific amount…. And not factor in OUR own environment and lifestyle. And body. And age. Etc etc etc.

I take a D/K combo pill. But not a HUGE amount and I get very little sun. My labs are fine and I feel good. but… as always…. That’s just me.

I enjoyed following this thread of yours. I’m always amazed at how much our members know and have experienced. Glad you are here. And thanks for sharing. Your story will now help someone else in their journey on down the road.

Life is good when we stick together.

(Allie) #38

So was I until I had it tested and came back dangerously high which had whacked out my thyroid too. Things sorted themselves out once I stopped the supplement I had been taking.


Interestingly, one of the indicators of calcium problems and/or parathyroid issues is too low of Vitamin D. That paired with higher calcium levels and borderline or high PTH. But… my vitamin D for most of last year was either normal or very high. Not one doctor took note of the 50,000iu of Vitamin D I had been taking for almost three years due to an extremely and critically low level I had in 2018. :woman_facepalming:t3::woman_facepalming:t3::woman_facepalming:t3: And that means I had hyperparathyroidism for many years before it was diagnosed. They were not stopping me from taking it to get an accurate reading of my levels and being too high made them think it couldn’t be calcium, yet it was! Without the supplements my vitamin D plummeted to like a 5 or 10. I stopped taking high levels of vitamin D on my own after NPC (parathyroid.com) taught me how it would skew results for diagnosis, so we could see the truth.

Another thing that interferes with accurate blood test results, especially measuring your PTH level, is Biotin (B7). Again, not one doctor noticed that I had been taking 10,000iu of Biotin since Dec 2020 for my hair loss because I was desperate. :woman_facepalming:t3: So it interfered with my PTH results. My 88 and 98 and 76 were actually well over 110. We know this because when I learned from NPC about how biotin interferes, I stopped taking it. The next test my PTH was 114.

So for anyone getting blood work done, I highly recommend to stop taking any supplement that has a high dose of anything before the test, like 3-4 days before at the least. Check your multi vitamin and make sure there isn’t an extra high level of B7 biotin in it or anything else. Or if you take any Hair, Skin, & Nails. That always has a few thousand iu of Biotin in it, at minimum. Then stop taking any supplement that might possibly interfere for at least 72 hours before the test. I personally take most my supplements out of my weekly pill holder about 4-5 days beforehand now so that I know for certain what my actual levels are without supplements.

They say our gut bacteria, or maybe the acid?, makes absorbing biotin difficult, and some other supplements too, and that’s why so many are 5,000 - 10,000 iu, hoping some of it gets through. Well, it absolutely does, as my hair skin and nails attest to but also my skewed PTH results, but the reason doctors never recommend taking it or stop it before a test is because the status quo is that none gets through. :roll_eyes: smh

(Omar) #40

I couldn’t have done anything without feeling supported by many members in this forum which elevated my positive moral.

It will take time to confirm this high calcium related to the symptoms of out of the ordinary thirst and urination, and when I am sure I will share my experience with the forum .

Thank you all