What is going on with fluid draining out of my body?


(Omar) #13

To keep you informed, I got blood work done yesterday. The doctor suspects the prostate. I did not want to interfere with his line of thinking. Anyway he asked for test for prostate cancer. It takes 21 days for the result.

I also had ultrasound for the prostate and the kidneys, the lab doctor said he cant see any anomality.


(Robin) #14

Yay for tests! That’s. Long wait for results, but glad you’ll get some insight.


(Edith) #15

See if you can search for posts by @Just_Juju. She went through hell with parathyroid problems.


(Robin) #16

You have such a good memory!


(Omar) #17

Thank you very much

She only created 2 topics, I did not see anything related to parathyroid


(Edith) #18

I’ll see if I can find the thread. I couldn’t get links to work yesterday.

Here’s the link to her saga. You might want to DM her to get more about her symptoms besides bone loss if you think hypercalcemia is a possibility for you


(Omar) #19

I visited the doctor today to review the results

He said everything seem to be fine.

61 lab tests and ultrasound, all OK. He shacked hands after reading all the result, then said any questions?.

I asked him then what causes my symptoms?
He said maybe stress :grinning:

He never asked me about my diet, so I thought I will tell him.

I said I have been eating lots of cheese, yoghurt, almonds for very long time. And this may have caused high calcium that maybe my parathyroid is not able to handle. He insisted that my diet has nothing to do with such symptoms.

I asked how can I check my parathyroid function, he said you have to make appointment with bone specialist.

I told him why when I quit dairy, and almonds the symptoms almost get way much lower. He said eating little high calcium foods does not cause such issue.

I told him it is not little, amount wise and time wise. I am living on such diet.

He start using his mobile and showing lack of interest.

Anyway
One more sample for the prostate in 21 days. And for the time being, I will quit all dairy except goat ghee, quit any high calcium containing food such as almonds.

In earlier post I mentioned that almonds was OK. I talked too soon, it was not OK, but I only new by elimination. So first I eliminated cheese and yoghurt, and found lots of improvement but still there. Then I stopped almonds and almost symptoms free but not 100%. So I said I have to wait and see if I improve further because maybe the improvement is time limited.


(Omar) #20

I really appreciate your support

Thanks


#21

Hi I got notified of this thread and thought I would chime in.

The way to check your parathyroid is not a dexa scan. A dexa scan will help you determine if you have osteopenia or osteoporosis. If you do then that will indicate you “already hit the ground” with a calcium problem and they will now help. Like you, I wish to know before I hit the ground. You should not suffer bone loss before anyone checks your calcium and PTH.

A PTH blood test will tell you if your Parathyroid hormone is making excess parathyroid. If it is it is the body’s natural response to high calcium in the blood. The glands are a regulator. Bear in mind many labs report normal ranges to be what a healthy 20 year old can have. They can be as high as 88. But for someone like me at 56, I should never be above a 65. My results of 79, or 88 or even 94 were considered normal by two doctors and only slightly elevated by my general practitioner because of how normal is reported, when in fact it was too high and a warning bell. But as all hormones do, it fluctuates throughout the day. (So do calcium levels.) You need several tests to catch the norm. Right before my surgery I showed a 114. But the week before it was a 56. LOL Either an anomaly or a mistake by the lab as all my PTH was between 78 and 100 all year.

Calcium in the blood should never be above 9.9. No matter what anyone tells you. Most doctors follow an inaccurate diagnosing parameter that waits until your calcium is well over 10, like an 11 or 12, and wont react immediately unless it’s 12/13 or higher. They believe how high calcium is is the indicator. It’s not. It is how long you have lived with any numbers above 9.9. Again, all the endocrinologists I saw ruled out parathyroid because my calcium was between 10.0-10.4. And twice 9.8 or 9.9. But my average over 10 years years (one test per year) was 10.1. However, my symptoms were worse than people who had an elevated 12 or 13, and I actually had three tumors. I now only have one parathyroid gland left but I am 100% cured. Takeaway: calcium levels in the blood matter even at the lower end of their “cut off.”

Calcium in the urine is another test to see if your body is dumping high amounts of calcium. Mine was. They simply put me on hydrochlorathiazide to retain more and dump less. They ignored it as an indicator that something was wrong with my calcium production and how my body was using it.

I can’t say if your issues are related to parathyroid, but it is the only regulator your body uses to regulate calcium levels, and it is the only job those glands do. If you want to explore that possibility I suggest visiting Parathyroid.com. Dr Norman and his team are the world’s leading experts and surgeons in the world. Believe me when I say it is the clinic doctors and surgeons go to when they personally have the issue. They have a plethora of articles and medical studies and journals and clear science for you to learn from before ever having to see anyone. Ignore the “infomercial” feel of the site. It is a legit, highly respected clinic, but due to lack of acceptance by the medical community years ago (blocked by arrogance and egos,) they had to get the word out somehow and grab people’s attention. They are simply screaming from a mountain top to save lives, and many at that, mine included. 56,000+ to be exact. They provide more information and science up front then even the leading surgeons in Chicago did. Chicago barely shared anything.

If you have a calcium issue related to parathyroid, this site will let you know. They also have an app that was priceless to me. I entered all my blood test results from the last 10 years into it and the gauge needle flew to the extreme red for hyperparathyroid. I only had one year’s worth of PTH results from 4 tests last year but it was enough in light of all the other parameters. And I had 16 of the 22 symptoms for years.

Whatever blood tests you get or have gotten over the years, I would let their site and their app judge the significance before your doctor, who doesn’t seem to be thinking beyond the step by step instructional manual literally created on a whim. Dr Norman has a publication to a medical journal that shows that in flying colors.

There are other calcium conditions unrelated to parathyroid, but parathyroid must be completely ruled out first, and accurately, before chasing the other possibilities or you can hurt yourself further. I had mine inaccurately ruled out three times last year but had three tumors removed in December after doing my own research. Chasing all the other possibilities would never have cured me at all.

While I’m 100% fully cured of hyperparathyroidism, I’m left with severe advanced osteoporosis from it and presently trying to build back my bones without their extreme osteo meds. I won’t consider using those unless my dexa scan next January does not show my numbers improving.


(Edith) #22

You are welcome. I only have one more thought where calcium is concerned. I recently listened to a Peak Human podcast where the person being interviewed, Patrick Theut, had healed his CAD himself. One thing mentioned was vitamin K. Vitamin K helps our bodies pull calcium into our bones and the other tissues that need it. Without enough vitamin K, the calcium will get deposited in places it shouldn’t such as joints.

I don’t know if this could be related to your problem, but since you mentioned feeling better without calcium containing foods I figured I would pass it one.

Patrick’s website about K and linked research is below:
https://www.k-vitamins.com/index.php?page=vitamin-k-home


(Omar) #23

Thank you for putting the effort in this valuable reply.

I have no clue if I have parathyroid issue or not, but I am surprised that the doctor does not want even to hear what I am saying.

I have no bone loss if that a must in parathyroid issues.

Any way , I will note down the tests required that you mentioned and will go to independent lab before even talking to a specialist.

Thank you again


(Omar) #24

I run out of vitamin K long time, never attempted to buy another

Thank you for reminding me.


(Allie) #25

K2 is one of my daily supplements as I get visual migraines which I have linked to calcium intake. Haven’t had one since taking it.


#26

Bone loss is not a must to have a parathyroid issue. It could take years before it begins to affect your bones. You would want to catch it before it gets to any bone loss.

Just rule out hyperparathyroid first, because if there is an issue it will cloud all other efforts.

Do research on parathyroid.com first too. Understand what you need to know about it before you or any doctors can rule it out.

I hope it can be ruled out. Most other calcium issues not related to parathyroid are not as critical or life threatening, unless of course they are ignored and neglected… but they are easier to manage and address when not. In that sense, ruling out parathyroid can give your mind a bit of rest from the worry and you can approach the concerns from other appropriate angles.


(Omar) #27

Thank you very much


(Edith) #28

I’ve been taking vitamin K regularly for the past three weeks. My joints are feeling better. At this point I don’t know if its coincidence or the vitamin K. Come to think of it, I also stopped supplementing Calcium at the same time. I can’t eat dairy, so I’ve always thought I needed to get calcium through other means as in supplements. Therefore I’ve been supplementing it for years. But since adding the K AND stopping the calcium supplements, my body feels much better. Only time will tell at this point. I have to admit, I don’t think it’s the placebo effect because I didn’t make these changes hoping for less joint pain.


(Omar) #29

I took calcium supplements like 35 years ago for few days. It gave me severe headache back then. I never tried it again.

My brother 2 years younger (61 years old) who we have close eating habits before keto, he continued to take calcium for many years, until he collapsed and rushed to the hospital with severe blockage/calcification of heart veins. While I cant say for sure, I suspect the calcium supplements he was taking to be the culprit.


(Edith) #30

A few weeks ago, my husband’s dentist told him he had stones in his salivary glands. I stopped his taking calcium supplements right away. We shall see if those stones go away.


(Allie) #31

Do you use collagen at all? It’s the high calcium levels in collagen that cause me issues, not straight away but after a couple of months use, guaranteed visual migraines.


(Omar) #32

It was long time ago. All what I remember is that I bought it from GNC