Newish around here but staying for bit


(Liz Ellen) #1

Four months ago, I learned why my husband — once a CrossFit devotee — was having trouble opening jars and fastening buttons: His muscles are deteriorating due to a genetic disorder called myotonic dystrophy. My partner has an uncertain future; he could have a normal lifespan, he might not.

A week later, I was sitting at my endocrinologist’s office and looking at my labs. For the past two years, I had been knocking on diabetes’s door. That day, I learned I had crossed the threshold. My fasting glucose was 126, one point into T2D territory. At 5’4” and 227 pounds, I was not just obese but severely obese. My cholesterol was high. My blood pressure was high. The only things not high were my HDL and vitamin D levels.

Before my reserved and patient doctor, I had a full-on meltdown. I was convinced I was losing my husband and that a heart attack was waiting around the corner for me. My daughters would have to find wolves to raise them. They are 4 and 10.

The Yuletide Season was a blur of cookies and eggnog, peppermint bark and pinot grigio.

Fully indulged and emotionally vulnerable, I decided to turn myself over to one more diet. Before, there had been Weight Watchers (roughly 12 times), NutriSystem, SlimFast and others. I did Jenny Craig at age 12.

I had given a lot of my money to the diet industry and kept failing. At the same time, I LOVED FOOD. I was so obsessed with food, I turned a journalism career into a food writing career for a while.

I jumped headlong into keto shortly before New Year’s. Since then, I have kept my carbs low and not cheated once. (I saw a video early on from Dr. Eric Westman that one “cheat” could set you back two weeks; that’s been enough for me to stay clean.)

After three months of simple meals consisting mostly of meat with veggie accents, something remarkable has happened.

I’ve lost at least 30 pounds, perhaps a bit more. I weighed 191.9 at home this weekend. I am no longer severely obese but just obese. In another 20 pounds, I’ll be overweight instead of obese for the first time in a decade.

Going on keto hasn’t fixed my life. My husband still has a form of muscular dystrophy (though he’s lost about 25 pounds himself jumping on keto with me). I’m still scared for our girls and my health. I’ve been grinding my teeth over the thought of what my follow-up labs will say — my fasting glucose has been under 100, which is phenomenal, but I’m certain I’m going to be a hyper responder and will get the statins talk.

When I started eating this way, people would ask me how it was going. At first, I told them, “I don’t feel cravings for carbs. I just feel like there is a hole in my soul where carbs used to be.” Today, I feel like the hole is filling in nicely (hopefully not with arterial plaque), and I’m wondering how I can make this more than another diet but a true way of life.

I promised myself I would give keto three months. Today, I’m promising to give it three more.

Anyway, just wanted to introduce myself and thank you all for being so engaging and smart. I have seen the internet in all its awful glory, and you all are an amazing, inspiring bunch. Keto on, friends.


(Little Miss Scare-All) #2

Oh you must mean me.Thanks!

Sorry, I just wanted to try seeing what cockiness feels like.

Welcome! And I hope your husband is doing better. That’s a real shame. But it sounds like you’ve made some pretty rad progress :+1:


(squirrel-kissing paper tamer) #3

What an excellent story and your storytelling is funny and touching. I think you hit the nail on the head when you said you agree to give it three more months. That’s how you make it a lifelong thing. By just continuing to do it. You may tweak things way down the road, get tastes for new keto foods, drop others but as long as you’re feeding your body what it needs (and not what your emotions demand) you’re on track.

Has keto helped your husband’s prognosis or symptoms?

Do let us know how your updated labs turn out. Fingers crossed!


(Liz Ellen) #4

Well, yeah, I did mean you. And you’re an amazing writer. Srsly.


(Liz Ellen) #5

Well, he says he feels better in general getting off the carb roller coaster. Since the disorder will lead to a progressive loss of strength, we thought it made sense for him to try to reduce his mass so there would be less of him to move around. It’s weird; he’s able to pick up our little one, but he can’t open a new jug of milk. Right now, it seems to be affecting his fine motor skills. We mentioned to his muscular dystrophy doctor that we were doing keto, and he said, “that’s great! it’s good for you!” I wasn’t sure if he meant keto specifically or weight loss in general. But I’m rolling with it.


#6

Amazing. Look at you completely flipping your world around, taking control! Wishing you continued success. You got this!

(By the way, you are a beautiful writer.)


(Liz Ellen) #7

Thanks, Kelly. It’s been my locus of control in a storm, for sure. I appreciate your kind words.


#8

Go you!
That’s an awesome start for both of you.

You were faced with 2 very scary pieces of news, without recovery time inbetween. Then there was the festive season to cope with. The emotional impact must have been huge.
A lot of people would have crumbled. Stuck with the pinot grigio, or chocolate.
You and your husband haven’t. You’ve not stuck your heads in the sand and pretended nothings wrong. You got out there and you’re fighting back. You know why you’re doing this so don’t let go of that reason, ever.

I hope that you and your husband continue to discover benefits of keto and that the MD progression is negligible.

KCKP


(You've tried everything else; why not try bacon?) #9

He meant the keto. Feeding your brain with ketones often helps, because the glucose-burning pathway can have problems, while the ketone pathway still works just fine. You might want to see if exogenous ketone supplements or MCT oil help him in any way. His is the sort of situation in which they might possibly make a real difference.


(Carl Keller) #10

Welcome LizEllen.

I got goosebumps reading your post. I’m so pleased to hear you finally have control of food and your health. I know how empowering this feels and I just want to give you a hug right now. :hugs:


(Jill F.) #11

Hi there and welcome! My hubby and I are going through the in sickness and in health business of marriage right now. He was diagnosed with prostate cancer 4 years ago, had prostate removed, all clear for 3 years. Now the cancer is back and they cant see where it is. So he is doing estrogen and radiation starts this week.

We decided to face this big C headon with keto and we are so glad we are doing it together. We marvel almost daily at our huge pile of too big clothing and how much we love broccoli! Amazing journey and we have both lost almost 30 pounds in 3 months.

I am so glad you have each other for strength and support. And yes the keto provides more stability in our emotions as we face these challenges called life.


#12

@LizEllen, I’m sorry for the struggles you’re facing right now. I’m encouraged you’re giving keto more time.

Thank you for sharing your inspiring story.


(Liz Ellen) #13

Thank you, Helen.


(Liz Ellen) #14

Interesting, Paul! My husband does take MCT oil; I will suggest exogenous ketone supplements to him.


(Liz Ellen) #15

Awww. Thanks, Carl. You’re very kind.


(Liz Ellen) #16

Oof. I’m sorry you’re going through health challenges, too, Jill. I often joke that my peers are no longer at the getting married stage of life but the divorce stage. I guess I can now add in serious medical problems stage of life. Sigh.

I hope the radiation goes well for your husband. Congrats to you on your success! And broccoli is the best!


(Gretchen Paduch) #17

LizEllen - You are such an inspiration!!! I am curious how the keto diet is helping your husband with his functionality. My husband was diagnosed with MMD 35 years ago. I also have two daughters with MMD, one of whom is due in January. Have you seen improvements with the diet?
I also have been diagnosed fibromyalgia so I am looking for anyway to increase our health. I have been unsuccessful with weight loss myself so far. I have also been gluten free for close to 15 years due to intolerance. Thank you so much for sharing.


(Marianne) #18

I loved your entire post, I really did. So much of it resonated with me, especially your lifelong struggles with weight, dieting, and how you felt when you came here. I, too, went to Weight Watchers at 12. When I found keto by some miracle and then this forum, I was at my lowest low physically and emotionally. My body hurt and I was almost infirm. I think worse than anything, I had NO hope of being able to lose ten pounds and keep it off, let alone 80. It was really horrible.

One day at a time. I hope after three months you will decide to keep keto a permanent lifestyle for you and your husband. I don’t cheat on keto and believe wholeheartedly that if I go off of it, I will gain all of the weight back and lose the extreme health benefits that I’ve gained. Carbage is my drug. On clean keto, I don’t crave it and can easily stay on plan. I know, however, that if I go off, I’ll binge and start that whole ugly cycle again - and I won’t be able to control how long I stay off. It’s taken me over 50 years to finally learn that where I WILL NOT test it. I see my husband go through that regularly. He is a candy addict and is still trying to figure out how to eat keto but still “control” his candy binges. Exercise in futility.

You’re right. If your doctor is anything like mine, be prepared for a shitstorm from him/her. :pleading_face::hugs: I have to go see my cardiologist frequently (A-fib, resolved), and my eyes just glaze over when he talks to me about my cholesterol. On that score, I listen to the experts here (and there are A LOT of them!), who speak on the subject, and take what my doctor says on that with a grain of salt. I don’t think the medical community has kept up with the new science in this area that prove “high cholesterol” isn’t all bad. It all depends on what kind of cholesterol and the presence of other markers that indicate good health. I calmly tell my doctor when he lectures me that I completely “hear” what he is saying, take it on advisement, and am deciding not to take a statin at this point in time. He puts it in his notes that “patient has been advised…,” and leaves it at that. After years now, he knows he is fighting a losing battle.

So happy to hear about your journey! Hope to see more of you!


(Marianne) #19

@LizEllen, I’m so sorry! I just noticed that your original post was from 2019! When I saw your name and avatar, I thought to myself, “Gee, I thought she was on here a lot longer than three months.” Duh.

Anyway, my bad!