Newbie with Psoriatic Arthritis

(Sisotek) #42

Hi rsahadi
great to hear from you but sad to hear what you have been going through, i sympathise with you about being unable to do the things you enjoy so cruel, do you work? i didn’t know what brain fog was like until i did the Pp thing and when it lifted i was shocked at how different i felt mentally and emotionally, point being a find i do not cope with any mental work or stress these days it just wears me out and makes me angry but only because i can’t take it anymore, i also have tinnitus so loud it’s like coming out of a concert only it never goes away, (even this subsides when fasting)
i have found keeping physical, doing hard work, or just get a big sweat on( i find the gym boring) anyway you can or just reduce the caloric intake which everway, keto or vegan, makes a big difference, but any triggers need to be treated like a smoker or a junkie, avoid them ! simple isn’t it !

i feel like a ragdoll with my emotions, what makes it worse is being stuck in an environment that isn’t supportive, i also look after my 90yr old mother (with Dementia) with no help from my siblings,
as you say one day at a time, it’s been 12yrs one day at a time, and it is hope that keeps me alive.

I started the drugs after 10yrs hoping it would help me out of this mental hole, but all it’s done so far is give me the option to binge on carbs without much pain and the Pred increases the cravings, i feel like the hole just got a little deeper, today is a bad day as i have a family thing to go to tomorrow and i hate feeling guilty and hate feeling ashamed, my focus is on getting away from my family now,
then I can focus on myself,
when “i’m sad” these days becomes “i’m heavily inflamed”
anyone else relate
not because of the impact it has on your life but does inflammation have a direct effect on your mood?

~sisotek~

(Sisotek) #44

Hi @welshieee
thanks for the update, sounds like yr in a good space, good to hear and a great source of hope,
what does a typical weeks meal plan look like, if it’s not too much to ask,
are there any meds or supplements you used initially,
i do agree with the whole carb theory from the point of view that the body in much the same way it will shut down producing insulin to survive i believe the system also goes into survival mode trying to exhaust all the excess fuel we eat esp the manufactured stuff we call food you can eat a ton of without feeling full like a bag of chips or bread, pasta etc, only we get other symptoms for us it’s PsA
doesn’t make it easier to deal with
as you put it, it’s the physiological and psychological barrier that is the hardest for some more than others, understanding that being an addict and is probably the best place to start, for me anyway,
feelin better than the last post, started a fast, instantly feel better only 18hrs in,
have no idea how you do 10gms of carbs unless your not counting veg or something like that,
keen to hear
~sisotek~

(Lesley) #46

Hi @sisoteck

Sorry for delay in reply and thanks for asking. I see you posted this a few days back. I have wondered how you were getting on too.

I’m pretty much identical to Welshiee first reply. Almost word for word. My psoriasis is the best it has ever been except for a flare up in late Jan/early feb, which was due to a small upset with diet. Every second day or so I was having a sandwich late at night. The connection between the bread and the flare-up was noticible within 12 hours.

I went back to very strict Keto and once again the psoriasis on my scalp is all but gone. I also noticed with the carb “slip-ups” that my face would burn at night.

As for the arthritis all was fine for weeks having my little carb fedups until about the 3 week mark and then it was like hitting a wall. I had aches and pains all over and a rather severe flare up in all my fingers and toes and one knee. Within two weeks of going back strict again there is no sign of any inflamation at all. Needless to say I have learned my lesson. I hope I have anyway because as you know about a year or more ago I did the same thing but with beer that time. I’ve also given up red wine too. I’m afraid it is having a drink that makes me want to go and find a tasty little treat afterwards.

Again like Welshiee, other then the damage that was done during the flareups I have no complaints and still symptom free whilte adhearing to the diet.

Also agree that the less carbs you have the easier it is. My downfall was saying to myself that one sandwich wouldn’t do any harm after nearly 18 months of keto. Becuase that leads on to another and another. I find I don’t miss the bread if I just stay away from it completely.

My heart goes out to you and everyone else suffering still. I’m so glad sisoteck that the meds are working for you on some level even if not ideal. I agree with you that inflammation does have a direct effect on your mood. I’m a completely different person while dealing with severe inflammation and pain. It can be a vicious circle. The more pain the more your mood is down and the more down you are the more inflammation.

Oh I nearly forgot to say that after hitting the wall and going strict again I started fasting until noon most days but not limiting the amount of food I eat at all for lunch and dinner. My evening meal would be no later than 6pm. I am having breakfast more often now though. Also I don’t restrict my veggies.

(Diane) #47

Extremely well said! I may steal this in the future. :smile:

(Sisotek) #48

Hi @KetoWally @welshieee
many thanks for the reply welshieee, wise words, still curious about BS, i’ve been IR for a few years and from what i’ve read it takes a while of fasting & being keto to reverse it and even then it’s a temp thing, the other thing i found after having a discussion with a gastro guy re fecal transp and stool biome testing, his views were if we are altering our gut biome the way we think we are or it can be proven no one knows what to do about it other than take probiotics at this stage and even they have no definitive science behind them, the direction is right just not effective enough,

hey Ketowally thanks for your input, agree carbs are like heroin for me one bite and it’s all over, seems the consensus is being keto is as effective as being a LC vegan, however both are not a complete reversal judging from your experiences, and Pp diet.
i assume you are both drug free also,

i’m traveling for 6 weeks (italy the birthplace of carbs) so i’ll be managing most of my BS with fasting and as much keto food i can get between pizza bread pasta & wine that will be at MOST meals,
while taking the drugs was a blow to me i’m keen to get back and move forward with life,

thanks again for posting

~sisotek~