Thank you. She had to move to a larger hospital, stopped breathing at one point and is in NICU. Neurologist had hoped she could stop taking the anti-seizure meds, started reducing them last week.
Would love to see this kid on keto diet. She loves coconut oil by the spoonfuls, btw.
So difficult just keeping her on “real foods” outside of home. School and O.T./P.T. etc are aware of her nutritional needs, yet send her home with candy and other junk food.
Her mother feeds the family more of a Whole 30 Paleo/Primal type of diet. Yeah, her mother and I are both very aware of benefits of ketones. Wish her father would help out…he doesn’t even think gluten is an issue…and this kid has auto-immune issues (diagnosed with Hashimoto’s at 18 mos old). I know how terrible I sound dissing my son-in-law; he is a very educated man; just wish he’d get on board and do what is best for his special needs child. I think part of the problem is that she appears normal physically, except for tiring due to ataxia, etc, and …I don’t know…anyway…hope she is home soon.