I am not a true celiac but I do test for gluten intolerance and my colitis has been SO MUCH BETTER since I gave up gluten, and then ultimately, all carbs. I’m in a colitis flare right now and I wouldn’t be surprised if it’s because I had more carbs than I should have over the holidays.
Am i now MORE intolerant of carbs than before I gave them up? Not sure, but I’d rather live without the gluten than keep my colitis in a constant state of inflammation.
Sue
These were not scientific studies but anecdotal reports and this is based on recollection of what they said. I believe they were talking about incidental exposure. Pre diagnosis they might have gotten a mild stomach ache, now they really react.
Here is a link to a similar post
My super unscientific opinion: could it just be a matter of relativity? I was watching a YouTuber who was talking about eating carbs and how much flatulence she noticed and heart burn. This made me realize the same thing by having someone else point it out. So it’s like for years dealing with heart burn and flatulence and thinking it’s normal, then experiencing life without it on Keto then eating some carbs and it returns to about the same level but much more noticeable because of the stark contrast. Anyway.
There is a well-known doctor (whose name escapes me at the moment) who has books, a Web site, and a YouTube channel promoting a plant-based diet, who claims that eating meat causes diabetes. There is one epidemiological study I’ve heard of that showed a mild correlation, but no randomized controlled study has ever supported this hypothesis.
You may be right about that
I posted this two nights ago
I rarely get any stomach issues any more. The gas was not terrible and pre keto would have not even been noteworthy
Just adding, keto helps suffers of those diseases, instead of causing them.
People with true celiac do not just develop it, they have always had it, often drs. do not recognize it. You might have a sensitivity to gluten, which is what I have. That is DRAMATICALLY different from celiac disease, which eating wheat can cause hospitalization or even death if not treated in time. If you follow a keto or even no grains paleo type WOE you won’t be eating wheat, so what does it matter?
While some very young children have it, mostly there are ages of onset. Childhood, 20s, 50s and later. You are born with the gene but so are 30% of Europeans. This gives you the potential to develop it but it is an autoimmune disease which is usually triggered by something. The body attacks the protein in wheat believing it to be invasive in some way. Some people develop Hashimotos Thyroid or Crhones instead as they are related diseases
From the perspective of someone with Celiac’s, prior to going gluten free I was always in pain of one type or another. While actively eating gluten, I could eat some and feel relatively ok (other than my chronic pain problems, and sporadic acute intestinal pain). After stopping gluten, all the pain went away. Now if I accidentally have some, there is an immediate reaction (intestinal pain) followed by wide spread pain the next day.
This is probably what could happen here. Its not they never had a problem with it, its that Keto has exposed the problem.
If they returned to eating gluten then there would be an adjustment period and things would “return to normal”.
but if you feel better on Keto/Gluten Free, why would you?
I have celiac disease, and all the stuff that has to happen for full blown celiac disease to occur, has nothing at all to do with keto. That being said, there are tons of people who just dont do well with wheat or gluten. Its no different than dairy, or cabbage, or soy, or lots of other foods that just dont sit well with some people. It is possible that as your friend becomes more aware ofr his diet and how he feels, he is noticing which foods seem to be easier on his GI tract. Bonus though, if he continues with keto, he will likely never consume any wheat or gluten, and that may be the end of it.
Well I am no doctor but I did not develop celiacs until after Atkins. No one else in my family has been diagnosed. Might be a coincidence…
McDougall says it but I’m quite certain there are a number of others saying the same thing. Some of them go so far as to say that sugar doesn’t cause diabetes. With statements like that, I typically don’t read any further anymore. Been there, done that, spent many hours trying to reconcile that stuff. Walked away and never went back.
I discovered my gluten intolerance after I had gone strict LCHF (almost keto) and been glutenfree for a while. And then I opted to eat a small piece of cake at my bonus dad’s birthday, and it did not go down well 
Some suspicions arose then, especially as my big sister was diagnosed with Celiacs when she was about 1 years old, and with some experimentation and later a gluten challenge it was concluded that I was gluten intolerant as well…
But I don’t think going LCHF or keto will trigger gluten intolerance, rather it’s more easy to discover how good you feel without and then how bad it makes you feel when you eat it again. At the end of the gluten challenge I was feeling bad constantly but it wasn’t as noticeable anymore as it was constant and almost was normal, instead of directly after meals and then feeling slightly better again as in the beginning…
So in my family we’re kind of wondering how long I might not have been tolerating gluten all that well, instead of blaming LCHF/keto for causing it.
Celiac disease is related to your genes. And gluten intolerance is different from celiac disease. I have gluten intolerance but do not have celiac. I can eat wheat without fear of dying or ended up in hospital, a true celiac would be in very real danger. I would just have stiffer joints and maybe a tummy ache for a few hours. Big difference. When I went keto I saw just how big a difference eating something you are intolerant of and stopping consuming it can be.
Yeah, DNA test confirmed that Celiac disease is in my genes…
In Sweden we seem to use both terms, but maybe specifically Celiac for when your intestines are damaged and haven’t recovered as of yet.
I think the main difference between celiac disease and non celiac gluten intolerance (NCGI) is that one has positive tests (tissue transglutaminase, endomysial antibosies, deaminated gliadin peptides, or endscopy) and one has negative tests.
I’m a celiac. When I get “glutened” I will feel run down, get a stomach ache and possibly get arthritic flare-ups, migraines and constipated. Large or repeated exposures may may it worse. I have not found that I react worse now that I am GF, but I think the symptoms may be more noticeable because I am not used to feeling sick most of the time anymore. Before I was diagnosed, I had migraines half the time, stomach aches most evenings, fatigue, arthritis flare-ups often, and my hair was thinning - that was my normal. Now if I get those symptoms, they stand out because they are unusual. KWIM?
YMMV, but I know some with NCGI who had much more violent symptoms than I ever did, and I know a celiac whose only symptom was anemia. It really varies between people.
Both my daughters tested negative for celiac blood tests but gluten makes them vomit for several hours, have diarrhea for several days, and break out with canker sores.
I find the term “coeliac” very helpful if eating out.
If I ask for gluten free then I often get a “look” like I am just making a request on a whim.
If I say “I am coeliac and get very sick if I have any - it is a food allergy” then wait staff are much more inclined to take me seriously.
Food allergies do (and should) put the wind up any respectable food vendor, so it gets a lot more respect.
Hopefully you read this. The blood test for celiac is notoriously unreliable and give lots of false negatives. If you are positive you have it, if you are negative you can still have it. An estimated 30% of people with celiac test negative on the blood test.
If you have the inclination the 23 and me will tell you if you carry any of the celiac alleles.
I stumbled across this post in 2021. So here I am from the future to tell you there MAY be a link between adult onset celiac disease and the keto diet due to a change in gut bacteria. Of course you already have to have the gene for celiac disease but there is a possible link there. I am 37 and was diagnosed with celiac 6 years ago. I did the Atkins diet through out my entire 20s. On keto now and having severe dehydration and constipation issues. Way worse than in my 20s. I’m trying to stick with it because the decrease in sugar and carbs has stopped diarrhea and bloating but boy is it extreme the other way now. I started to do research because I feel like my body is telling me something isn’t right. I came across a treasure trove of articles about the long term effects on gut health and the keto diet. I always had a sneaking suspicion … 