Reversal of untreatable genetic neuromuscular disease SBMA on keto


(Todd Allen) #21

Wilhelm, I’ve experienced many ups and downs. The ups are mostly winning, by several measures though not all, I’m at my best fitness in years. I have periods of a week or two or three of great progress making rapid gains in strength and endurance and then something goes wrong and my performance declines dramatically, sometimes I know why such as an injury, sometimes I find likely explanations such as a mold problem at home, a periodontal infection and other sicknesses but other times it’s hard to tell why things go well or bad. Sometimes I suspect it is due to a supplement or dietary choice though it takes time and repeated testing to gain much confidence in what things or combination of things make a difference.

Don’t be afraid of losing weight, be afraid of losing muscle. Being lean is good. Our disease creates a tendency for fat to accumulate in places such as the liver and muscles where it causes damage. Having unstable high blood glucose and high serum triglycerides (metabolic syndrome) is a sign fat is accumulating in those places. With advancing age this becomes an issue for most people not just those with our disease and when it happens most people though not all find a keto diet can be a potent tool to lower insulin, reverse insulin resistance, reduce the energy substrates circulating in blood and reduce the ectopic fat resulting in dramatic improvements in health.

Processed foods with rapidly digested carbohydrates: added sugars, fruit juices, starches from flours, etc. tend to be the most problematic and avoiding those is a good first step. I think the best approach is to get a blood sugar testing kit such as used by diabetics and check blood sugar before and after meals and avoid foods that significantly impact your blood sugar. The next most important thing is to develop habitual strength promoting exercise practices and track the results so you can evaluate progress to help guide lifestyle choices. I’m becoming a huge fan of strength focused calisthenics - squats, lunges, sit ups, push ups, pull ups, etc. done briefly but often with loading that maximizes exertion and heart rate elevation as quickly as possible. In addition to diet/nutrition/supplements and exercise there are other important factors such as optimizing sleep, stress management, toxin avoidance and developing a positive mental state and drive to make the most of what you have got because it does make a difference.

It’s a huge topic which I want to address in book form though I’m still in a stage of rapid learning and revision. I have many thoughts but little certainty. I’ll use this forum’s private messaging feature to send you my email address for personal discussion.