Yes it is a struggle to find Drs on board with this type of diagnosis because even though its not considered a new diagnosis, there are a lot unknowns in the medical community and Drs continue to debate the validity of a diagnosis of a disease process that is very hard to quantify by tests. However, my mom did find a Dr who agreed with the diagnosis and she was able to take Lyrica to help deal with the nerve pain and through an increase in light exercise(walking) and reduction of stress coupled with better diet and more sleep…she rarely gets flare ups. However she does need to be vigilent to continue with what works because a simple issue like not enough sleep… can send you into a flare and flare ups can last anywhere from 2 days to several weeks. In a flare, she is in bed a lot, very tired and in lots of pain. When she isnt in a flare up…she functions pretty comparatively to other people.
Can you develop fibromyalgia even if you’re healthy?
@VirginiaEdie I will for sure…thank you for the time you took to respond!
Hi @Emacfarland, I was wondering if you have made any changes in the past few weeks, and if so, have they helped?
Just a couple things to throw out there for you to consider/research if you’d like. This may also be a bunch of woo to you…but I lean crunchy 
I had some symptoms of estrogen dominance and started seed cycling in June. It has helped balance my hormones. https://naturalfitfoodie.com/seed-cycling/
My husband has Fibro. In addition to dropping gluten years ago (but you’re already there being Keto) he started an iodine protocol: 100mg tri-iodine, 1000mg of B3 and 200mg of B2. While not eliminating his symptoms, this has been the most effective for reducing pain, fatigue and brain fog.
@VirginiaEdie, yes…and I have been doing much better amazingly…I listened to a podcast with a doctor that discussed adrenaline and the role of progesterone in lowering it. He thinks too much adrenaline is the cause of quite a few diseases including fibromyalgia. I got some natural progesterone cream, as he suggested, (I think I have low progesterone to start with…) it’s made a marked improvement in soreness, fatigue, headaches…so that’s been a huge help!
@cadori very interesting…I do take iodine and b2 and b3. Hormones seem to play a larger role in this than I thought!
When I was in the midst of a full-blown episode of Epstein Barr, I felt much as you’ve described.
And our hormones are so incredibly delicate. Since you have low progesterone…perhaps consider seed cycling. It really just amounts to pumpkin and flax half the month and sunflower and sesame half the month. I have seen a balancing of my progesterone/estrogen by doing this. Hormonal acne is gone and cramps and breast tenderness are significantly lessened.
I’ve also read that fibromyalgia may be caused my excess adrenaline. If I remember right the excess adrenaline causes lactic acid build up in tissues. For women, lactic acid generally builds up in the upper back, for men it’s in the chest. Been a while since I’ve read about it though… I was once (incorrectly) diagnosed with fibromyalgia. I also think I was tested for adrenaline levels…? Did you have adrenaline tested?
I didn’t but the natural progesterone cream really improved things, and I have no doubt my adrenaline is high, due to stress or exercise…I can feel it in my body.