Yes I understand no one here can give medical advice…but, I’m curious about people’s thoughts or feedback regarding my current situation. And I’ll be as concise but thorough as possible! I have been LCHF for over 5 years. I am very knowledgeable about pretty much anything keto related, as I am a personal trainer that specializes in low carb nutrition. I’ve been part of this community since way back when we were in a Facebook group together. I still do tons of research and reading and started keto to mitigate my risk of developing T2D which affected many family members and for which I have an increased risk of developing based on my genes. Some important background info- I am 38, two healthy children, very lean, active (running, functional strength training, other cardio, usually about an hour a day, sometimes more.) I eat a “carnivore keto” style diet most of the time, which I seem to feel good on. I don’t particularly notice having negative reactions to vegetables other than my digestion is more comfortable without them. I typically eat in a 4 to 6 hour window daily. My sleep isn’t great. Some nights are better than others. Life stress- went through a divorce (very amicable!) about a year and a half ago. My ex is very supportive, but I do have our kids the majority of the time. Which can be exhausting…so many sports…I get all my electrolytes, cod liver oil, fermented foods on occasion, I drink coffee in the morning…I take cytomel (t3) for low thyroid and Wellbutrin for depression (helpful during a stressful time in my life.) My issue is, lately I have been feeling extremely fatigued. Many days I wake up and don’t feel rested, I’m stiff and achy and while I used to bounce along doing 6 and 7 mile runs and get through the rest of the day, lately I can barely slog through a mile or two before I want to go home and nap. My hips and legs and neck ache all the time. I foam roll and it doesn’t seem to do much. I get headaches, sometimes migraines. I’m foggy headed a lot of the time. My periods are much more painful than you’d expect given my over all health. I am a “lean mass hyper responder” as defined by Dave Feldman. My total and LDL cholesterol numbers are “high” and my trigs are very low, about 36. Which to me indicates almost no inflammation. But the way my body feels lately would indicate otherwise. It feels like I ran a marathon and then someone beat me with a bat afterwards I have a friend that has fibromyalgia and so of course I’ve been researching it…my symptoms are the exact symptoms seen with this disease. (Is it a disease?? I suppose so…) Is it possible for someone in “perfect” health doing “everything right” to develop something like fibromyalgia? I understand stress can trigger it, and I have certainly been through my fair share recently. I’d love to hear your thoughts or questions!!
Can you develop fibromyalgia even if you’re healthy?
The problem with fibromyalgia is it’s considered an umbrella diagnosis. Which basically means if you have certain symptoms they can put people
Under the umbrella and say fibromyalgia without actually knowing the cause or if they actually fit into a different disease with similar symptoms. People can develop it at different times. Usually with people who have other diseases such as auto immune and things like that. I would check with your doctor and explain symptoms, could be something is just “out of whack”. Never hurts to check up with them.
I know what you mean, we can be very knowledgeable in our own profession and miss something right in front of us, sometimes I feel invincible because I understand so much and in the next blink of an eye I missed something I knew all along that was right in front of my face but never really focused on that particular thing?
I wonder if CoQ10 (ubiquinone) would help, did a post here about it.
Wonder if this could be a possibility? I’m just using this link as an example?
A Connection Between Fibromyalgia and 'Leaky Gut’?
”…This may happen due to a somewhat controversial condition called leaky gut. “The gut is a barrier between the outside world and our inner organs,” explains Kumar. … This may lead to the symptoms that people with fibromyalgia often relate to their doctors.” …More
I know you’ve been low carb a long time, so I’m sure you know more than I, but I’ll post my question anyway. Are you eating enough? I would imagine that not enough food could cause many of the symptoms you are experiencing. I went through something similar last year and I thought I was suffering from adrenal fatigue. I upped my food intake and felt much better.
Also, you say you feel pretty good on keto carnivore but you are having all these problems and headaches. Maybe keto carnivore is not working for you and you have become deficient in something.
My final thought is that maybe your thyroid medication needs to be adjusted.
@atomicspacebunny I take a really high quality co Q10, actually it might be easier to list supplements I don’t take lol!! I also take collagen peptides, curcumin, full spectrum digestive enzymes, krill oil, chlorella, magnesium, plenty of Real Salt in my diet, small amounts of dairy (usually organic sour cream or raw cheese or something. Not a ton of dairy…but dairy wouldn’t cause these symptoms anyway…). I don’t consume a bunch of oxalates (I have coffee with a coconut/almond milk blend every morning. But that’s not changed in years). I’m stumped. The achy-ness and fatigue…they are starting to affect my ability to get through the day. So I’m very motivated to figure it out. I don’t know if taking some real rest days, like a few days of complete rest, would help. But the consistency of the symptoms getting worse…that worries me
I would think it is - nobody seems to understand what it is or what causes it so I wouldn’t rule it out.
One thing I’ll throw into the mix is the possibility of reproductive hormone imbalances. Your symptoms could be indicative of something being awry there & given the painful period situation it may be worth having them looked it. If nothing else you’re of an age where perimenopause could be around the corner so it never hurts to have a baseline.
Hope you get it sorted - OTT fatigue is a bitch .
I’m going to go maybe with this😑
I’m no expert, just an observation
All of life and it’s stressors coming in to or catching up over this time?
Trauma and Trials.
And frankly, it’s just taken its course and you may be " feeling " it now
Co-Parenting and the ups and downs that come with being a single mom
Sometimes we miss what’s right in front of us
Like mentioned b4
I do…all the time!
I can tell your a loving mom, parent and role model for your children😄
And a well respected trainer and helping others
100%…
Well, that’s my thoughts
Wishing you the best!
@anon54735292 I had my hormones tested and I believe I had low progesterone, but my male doctor was not helpful in interpreting that. I used do have amenorrhea due to low body fat. I had to regain weight and my periods resumed but I leaned out to a healthy but still lean body fat level (athletic levels). I would think my periods wouldn’t be so uncomfortable. It’s bizarre
I wonder if the fatigue, achiness, and fibromyalgia are all inter-related; almost sounds like arthritis and it could still be a leaky-gut despite all the supplements, my first inclination if I were experiencing such symptoms would be, is to get a leaky gut test to see if there are any anti-bodies trying to eat me alive (e.g. cartilage) just to make sure that’s not it?
My second plan of action would be is to get more gelatin from actual animal hooves (not the processed stuff) in my diet! And maybe some Japanese potato’s!
Bummer
If it hasn’t always been that way for you then it might be worth a visit to a doctor who DOES understand (beyond the very basics) female reproductive issues. Doctors love to say that period pain is normal but if it isn’t normal for YOU then it’s something to look into.
I wonder also if it could be fibroids on the ovaries? I would think your doc would have caught that?
Good suggestions…leaky gut test. Hmmm, might check that out…I don’t really have any serious GI issues. And I do have homemade bone broth/gelatin as well as glycine. The reproductive hormones wouldn’t seem to be an obvious cause of the muscle soreness, but I will do some more digging before I go to the doc!
I’ll throw in one more possibility & leave you be as there is a lot here to consider already but maybe check your ferritin if you haven’t in a while. Good luck & I hope you get some answers/relief
@anon54735292 one of my limitations is that I don’t have great insurance after getting divorced, so my options are limited as far as the doctors I can go to . But I will see what they are, because I do think my hormones are out of whack somewhat- I have symptoms of low progesterone, but getting help interpreting the labs didn’t get me very far again, I keep coming back to that caveat…I’ve been eating LCHF for a relatively long period of time…so things should be settled adaptation and hormone wise. I’m obviously insulin sensitive. I am active, fit, have low triglycerides, my meat comes mostly from pasture raised animals on local farms, my gut can’t possibly be deteriorated to the extent that I’d have severe permeability issues- I mean it doesn’t seem likely. I’ve been on antibiotics maybe twice in 5 years. I do everything you’re “supposed” to do to maintain a healthy gut. Bone broth, sauerkraut, yada yada…I take pain relievers like Motrin or Tylenol occasionally. I don’t drink, I’m not ingesting pounds of spinach or kale in green smoothies…I take the supplements that are for neurotic types that follow people like Chris Masterjohn…so what the hell?? I feel robbed!
I don’t doubt
It’s not a great situation to be in with your insurance the way it is so you might just have to go for the tests that your instincts tell you are right & hope you hit the bullseye. I’d certainly do some research so you can ask the right questions & perhaps if your doctor gives you another “I don’t know what this means” you could politely but forcefully reply “no worries - I’ll let you do some research & get back to me so we can solve this”.
Progesterone is one of the hormones made from cholesterol. Are you getting enough saturated fat? You might try increasing your calorie count by adding some fat to your diet. With enough saturated fat, your body should be making plenty of cholesterol (good for the brain, too!), and your sex hormones should be better regulated.
And since cholesterol is also important to the proper functioning of the immune system, it might help your symptoms of fibromyalgia, as well.
@VirginiaEdie I live in Colorado (as I have my entire life). I don’t travel much- never on the east coast, and in the past CA and TX were places I’ve visited the most. I know Lyme can have similar symptoms- are there tests that’s confirm if that could be the cause?
@PaulL oh yes I eat COPIOUS amounts of saturated fat. The basis of my diet is fatty ribeye. My total cholesterol is almost 400, LDL around 275. So there’s plenty of energy in the form of fatty acids being shuttled around my body!
@anon54735292 what is frustrating is that I think I know quite a bit more in many regards than most mainstream doctors in regards to things such as the etiology of metabolic diseases like diabetes, why high cholesterol isn’t inherently harmful, etc. I explained to my doctor that I follow a ketogenic diet and that my labs would show I have very high total and LDL cholesterol and why. But it’s like you’re speaking a different language. And here’s one of my follow up questions for those reading and responding to my post (thank you to everyone taking the time to do so!!)…if indeed I was diagnosed with fibromyalgia, I would obviously prefer to avoid taking medications for it. And I also would like to avoid OTC pain relievers as much as possible…SO! If I am already eating a LCHF diet, avoiding things I know can be problematic as far causing increased inflammation (oxalates, etc), what other strategies can I use to improve the symptoms such as soreness, fatigue, headaches, trouble sleeping? As I mentioned I am also incorporating supplements I know can be useful- turmeric, bone broth, glucosamine, fermented foods…I do live in Colorado so I suppose there’s always medical marijuana